Will my daughter ever get better?

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FleurB89
Posts: 1
Joined: Thu Oct 15, 2020 3:09 pm
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by FleurB89 on Thu Oct 15, 2020 3:15 pm

Will my daughter ever get better?

My daughter has been under the care of evelina children's hospital in london since 3y (now 11y) for her bladder and bowel. From what I understand she has an overactive bladder spasm with urgency to go and uses a peristeen, irrigation system for her bowel to aid compaction and to reduce the size of her rectum. However she still wets daily, now, every night and the most challenging thing is her behaviour and attitude toward it all. She'll stay put in wet and soiled clothing, not clean, take any of her treatments seriously or understand the risks in being unclean or independent in ANY aspects of her personal care especially medical. I'm almost at breaking point with it all, any advice? Thanks!

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Mr Jeremy Ockrim
Posts: 11
Joined: Tue Mar 12, 2019 12:51 pm
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by Mr Jeremy Ockrim on Thu Oct 15, 2020 7:00 pm

Re: Will my daughter ever get better?

Overactive bladder symptoms in children can be idiopathic (unknown cause) or sometimes related to an underlying (nerve) condition. It is important in persistent cases that underlying spinal causes are ruled out and you should talk to your specialist about this

For most patients with idiopathic overactive symptoms they tend to improve through adolescence and a conservative line of treatment (behavioural and medicine) is employed

For patients whose symptoms continue beyond puberty, further (urodynamic) assessment is recommended and escalated therapy considered. Options include Botox injections, sacral neuromodulation and for resistant cases surgery in the form of bowel augmentation of the bladder. These interventions should be discussed within specialist care
Mr Jeremy Ockrim
Consultant Urological Surgeon in Female and Reconstructive Surgery

http://www.talkhealthpartnership.com/on ... ockrim.php

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