Chronic undiagnosed lesions

Do you have a question related to a skin condition that doesn't fit in any of the other boards? Perhaps you're living with ichthyosis, hyperhidrosis or something else we've not covered? Your questions and discussions can be posted here.

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Multiple Matters
Posts: 2
Joined: Mon Sep 07, 2020 9:33 pm
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by Multiple Matters on Wed Sep 16, 2020 11:15 pm

Chronic undiagnosed lesions

Since 2004 I have suffered with a chronic un diagnosed condition that started on my back. I have seen several dermatologists over the years and no biopsies have been done. One said I could have cognitive treatment which upset me as they implied its was all in my mind. It certainly is not! Another implied they were just scratches. I know they are not. Another said Ive just got dry skin and uritcaria but when I see images of that, its not. They are internal as full of blood and some bleed. Scabs have been examined and said fungus, no signs of scabies. I`m not self harming. Its not a rash either. Random in size they just `appear` anywhere on my body, including scalp. Some are tiny dots in a line,or just one, some are larger and aggressive as if pins were being poked into me. So nerves affected. The worst one I experienced was on my buttocks. I had an IG blood test that said it was raised but no further investigation. Ive seen every Dr in my GP surgery about my condition. The last one is referring me again as its getting me down. I want to be believed and for a Dr to think outside the box, is this a new/rare condition, is something else going on internally? Unrelated to this I also have Rosacea paples on nose since 2005, in 2009 had what looked like a KA on my face and was treated as SCC and Vitiligo since 2015 I have pics but too large to show. Hoping an expert can help.

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Dr Andrew Thompson
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Joined: Thu Aug 24, 2017 9:41 am
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by Dr Andrew Thompson on Thu Sep 17, 2020 3:13 pm

Re: Chronic undiagnosed lesions

Hello

I'm sorry to hear of your frustration on getting a diagnosis and treatment for your condition. We tend to recommend that in situations where there has not been a clear diagnosis it is worth providing comprehensive assessment. This would normally include full physical and psychological assesment. If this is offered it does not mean that the clinician is suggesting that it is 'all in your mind'. There are complicated relationships between the mind and skin. Consequently, it is certainly worth asking your GP if you can be referred to a dermatology department with a specialist multidisciplinary psychodermatology team with experience of assessing undiagnosed/unexplained conditions. There are medications and therapies that can help many people who have presented with what initially appeared to be unexplained conditions.

It is important to conduct a very detailed medical screening before offering medication/treatment. It is also important to provide support or/and treatment for any associated or secondary distress accompanying your condition as such reactions may also impact negatively on the skin condition.

Whilst, it is not possible in a post like this to provide a diagnosis or treatment advice, I hope that this message provides some reassurance that people with similar types of presentations as you describe can and do benefit from the thorough assessment approach that I have described above. So it is worth seeing if you can get another referral and seeing where this takes you.

Best wishes,
Dr Andrew Thompson
Registered Clinical and Registered Health Psychologist - DClinPsy., C.Psychol., AFBPsS., DipCAT., FHEA., BA(Hons)

http://www.talkhealthpartnership.com/on ... ompson.php

Multiple Matters
Posts: 2
Joined: Mon Sep 07, 2020 9:33 pm
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by Multiple Matters on Fri Sep 18, 2020 7:54 pm

Re: Chronic undiagnosed lesions

Thank you for your reply Dr Thompson,

I will speak with my GP about referral to specialist multidisciplinary psychodermatology team.

Thank you again.

Multiple Matters.

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Dr Sree Krishna
Posts: 49
Joined: Thu May 28, 2020 6:06 pm
Location: London
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by Dr Sree Krishna on Mon Sep 21, 2020 7:37 pm

Re: Chronic undiagnosed lesions

Hello there,

I'm sorry that you've not been given an adequate diagnosis to date. You did mention that the photos were too large to show - I'd love to have a look if at all possible.

Best wishes,

Sree
Dr Sreedhar Krishna
Consultant Dermatologist and Honorary Clinical Fellow in Dermatopathology

https://www.talkhealthpartnership.com/c ... ar-krishna

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