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Vit D and bowel leakage

Posted: Mon Jun 17, 2019 2:24 pm
by sparky123
I just noticed that the forum is for people with MS. I don’t have this condition (touch wood!) and I was about to delete it, but then thought the post might still be relevant and of interest.
I have been taking Accrete D3 for over five years, starting when I had a long course of high dosage steroids for Temporal Arteritis, and continuing when a scan showed osteopenia. For over four years I have had slight (and sometimes not so slight) bowel leakage, nearly always when I exercise, even walking. I don’t even know that this has happened usually, I don’t feel it until it is too late.
I didn’t connect the horribly embarrassing problem with the vitamin D content of the pills until my sister came to stay, and confided that she had had very similar bowel leakage while taking a course of vitamin D pills, and on stopping the pills, the problem disappeared! I am really hopeful that stopping the Accrete D3 will help me. I haven’t taken it for the last few days, and so far, so good.
I have had very invasive and comprehensive tests to try to find the source of the problem, and have stopped exercising almost completely, although I know this is not good for me, but it saves a lot of embarrassment.
I will talk to my doctor and see if there is an alternative form of this medication that I can take. Has anyone else come across a link with ABL to Vit. D? Do you think there might be anything to this theory? I will let you know how I progress, I would love to get back to jogging.

Re: Vit D and bowel leakage

Posted: Thu Jun 20, 2019 9:57 am
by Polly Weston
I agree that it is best to discuss medication options with your GP. There is research to suggest that sufficient vitamin D levels can actually assist pelvic floor muscle tone, and studies are inconclusive as to whether vitamin D causes bowel leakage.

The most effective way for regaining your quality of life, and in particular being able to exercise without risk of ABL, is to seek advise from your local community NHS bladder and bowel service. Your GP will be able to refer you, or you can search via NHS choices. Then, under specialist nurse or specialist physio guidance, you will be offered you an examination to determine the strength and tone of your pelvic floor muscle and support you with individual pelvic floor muscles exercises to improve that muscle strength and tone and be taught how to use it to prevent ABL during exercise.