NF1
Moderator: talkhealth
- professor andrew r thompson
- Posts: 31
- Joined: Thu Aug 24, 2017 9:41 am
Re: NF1
Hi
I'm not sure about new medical treatments for NF1. However, there is support available to help you grow your confidence and manage any intrusive reactions from other people. A good starting place might be to visit the website of changing faces or possibly www.skinsupport.org.uk. Your GP can also provide access to free support from services such as IAPT (improving access to psychological therapies) and your secondary care doctor might also be able to provide you with access to a clinical psychologist. Psychological support can't get rid of the condition of course, but it can help with managing the impact, and it is well worth a try for this reason alone... Support can often be provided on a one to one basis or online.
Best wishes,
Andrew
Clinical Psychologist
I'm not sure about new medical treatments for NF1. However, there is support available to help you grow your confidence and manage any intrusive reactions from other people. A good starting place might be to visit the website of changing faces or possibly www.skinsupport.org.uk. Your GP can also provide access to free support from services such as IAPT (improving access to psychological therapies) and your secondary care doctor might also be able to provide you with access to a clinical psychologist. Psychological support can't get rid of the condition of course, but it can help with managing the impact, and it is well worth a try for this reason alone... Support can often be provided on a one to one basis or online.
Best wishes,
Andrew
Clinical Psychologist
Dr Andrew Thompson
Registered Clinical and Registered Health Psychologist - DClinPsy., C.Psychol., AFBPsS., DipCAT., FHEA., BA(Hons)
http://www.talkhealthpartnership.com/on ... ompson.php
Registered Clinical and Registered Health Psychologist - DClinPsy., C.Psychol., AFBPsS., DipCAT., FHEA., BA(Hons)
http://www.talkhealthpartnership.com/on ... ompson.php