Search found 5 matches
- Thu May 12, 2022 6:04 pm
- Forum: Ichthyosis
- Topic: Use of biologics in EI
- Replies: 1
- Views: 780
Re: Use of biologics in EI
The use of biologics in severe types of congenital ichthyosis (Netherton syndrome) has been trialled in the USA. The use of biologics is not available (licensed) in the UK and there are no ongoing trials. Further studies are required and clinicians in larger centres looking after individuals with co...
- Thu May 12, 2022 5:59 pm
- Forum: Ichthyosis
- Topic: Alternatives to zorac gel
- Replies: 1
- Views: 835
Re: Alternatives to zorac gel
Tazarotene which is the active ingredient of Zorac gel has been discontinued and withdrawn from the market in many countries. Unfortunately we don't have an alternative available.
- Thu May 12, 2022 5:52 pm
- Forum: Ichthyosis
- Topic: Ichthyosis and Diabetes Type II
- Replies: 1
- Views: 1468
Re: Ichthyosis and Diabetes Type II
Dear Jeremy, thank you for posting your question. A balanced diet is good for well being and maintaining health skin and good glycaemic control. You can maintain a good diet without high sugar intake with regular meals and hydration. Please discuss with your diabetic team how best to achieve this.
- Thu May 12, 2022 5:47 pm
- Forum: Ichthyosis
- Topic: Retinoids for ichthyosis
- Replies: 2
- Views: 884
Re: Retinoids for ichthyosis
Retinoids are commonly used by Dermatologists for a range of skin conditions. The truth is we don't know much about long-term use of oral retinoids. There is no consensus among Dermatologist about monitoring but clinical experience suggest they are safe. The main concerns are teratogenicity if the p...
- Thu May 12, 2022 5:29 pm
- Forum: Ichthyosis
- Topic: Gene editing research for EI
- Replies: 2
- Views: 913
Re: Gene editing research for EI
Thank you for your question. I am not aware on anyone else having expertise in gene editing for EI. I would suggest you contact the authors of the 2019 publication who are based in Salzburg Austria. It may be possible they are working on the next steps.